Although September has come to an end, we’re excited to announce that both The White House and Arizona Governor Katie Hobbs have officially recognized September as Sickle Cell Awareness Month! These proclamations emphasize the importance of raising awareness and addressing sickle cell disease (SCD), especially in Arizona.
Sickle cell disease is a genetic condition that causes red blood cells to become rigid and sickle-shaped, which can block blood flow and lead to pain, infections, and organ damage. SCD is a lifelong condition that requires careful management to prevent serious health complications.
In Arizona, every newborn is tested for sickle cell disease through our comprehensive newborn screening program. Early diagnosis is key to managing the condition and improving health outcomes. The newborn screening process can identify whether a newborn carries a sickle cell trait. It’s essential to know your sickle cell trait status, especially when planning a family, as understanding whether you carry the trait helps inform decisions about potential health risks for a child’s future. To learn more about Arizona’s newborn screening program and other conditions included in testing, visit www.aznewborn.com.
For individuals living with sickle cell disease, the Sickle Cell Foundation of Arizona provides vital support and education. They recently launched the 360 SCD Hub app, designed to help patients understand their condition and track symptoms, while also empowering them to take control of their health.
The proclamations from the White House and Governor Hobbs remind us that raising awareness and supporting families affected by sickle cell disease should extend beyond September. Let’s continue working together year-round to build a more informed and supportive community, ensuring that everyone has access to the resources they need to manage their health.
